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Topic: Health
disclaimer: this is my own personal story about my dealings with my fibromyalgia. your own disorder and results may differ. this is my story and my opinion. i am not a doctor, but i think that by telling personal stories, others can find comfort and hope. if you have fibromyalgia or are dissatisfied by your treatment, seek help from a medical professional. this blog is intended for mulling and entertainment only, and i do not have all of the answers, only my own trials and tribulations to relate.
D I A G N O S I S
Being disgnosed with fibromyalgia recently was actually a relief to me. Having had the same bizarre, seemingly unexplainable (excepting by stress) symptoms for nearly 20 years, I'm happy to know that what I've got has a name. However, the downer to all of this is not only the newness of the diagnosis in medical history, but the fact that some pyhsicians seem to turn their nose up at it as if they've discovered it all already, and that it's nothing but a garbage diagnosis that's underscoring a larger problem, if there is indeed one at all.
Let me tell you people something: it's as real as the sense you're using to read this blog. It's as real as a broken arm, a broken heart, a stubbed toe, a headache. Though fibromyalgia may come from different causes (see this excellent Wikipedia article on the subject), it's 100% real, and I truly believe it requires both the patient and the physician to work closely together to figure out the root cause of the patient's specific form of fibromyalgia, and that only when this is done, the real treatment can begin.
There is supposedly no known cure for fibromyalgia, but rest assured, there are ways to reverse some of the side effects. I'm no doctor, and what I have to say over the course of my new blog entries might not work for everyone — you should not try what I'm doing with no supervision, but rather consult your personal physician, as your problems may differ from my own –but what I want to put forth as part of this blog is my own attempt to negotiate my disorder and hopefully find long term relief without having to take arse-loads of drugs consistently for the rest of my life, even as I've had to use them as a means to get me to the next step.
D R U G S A N D C O N T R O V E R S I E S
In addition to fibromyalgia, I also have excessive sleepiness. My family has a history of cataplexy and manic-depression, among other things, making a diagnosis and treatment even more difficult. For my symptoms I have been given hydrocodone and modafinil, and on occasion (for muscle spasms) I take flexeral. Though I have tried a variety of SSRIs, MAOIs and triphasic drugs, I've found that the three simple drugs mentioned at the top of this paragraph are far more effective than all the fancy new acryonyms combined. The anti-depressant formulas universally and inevitably aggrevate my anxiety and stress (which contributed to the fibromyalgia in the first place), and I find that side effect to be much more dangerous than I do being a little bit "high" for 10 minutes in the morning when the hydracodone takes effect. I absolutely hated it when my doctors thought they were doing me a favor by prescribing me Cymbalta, Skelaxin, Nortriptyline, and all those other complicated formulas. Why they thought that replacing a slight acetaminophen risk with drugs that cause me severe anxiety, lack of care for personal hygine and the shits is beyond me, but there you have it. As I understand currently, there is a fight between the FDA and a doctor on a liver consulting board over the acetaminophen issue, but seriously, folks, my point is this: if I have to trade being careful with my acetaminophen intake with the joys of blinding suicidal craziness, I'll choose the slight liver risk and just drink more fluids throughout the day. Please, for crying out loud, if you want to ACTUALLY save lives, don't take these kind of inexpensive, life-saving acetaminophen products off the market. How many suicides or other terrible social ills are caused by antidepressants (TWO of my closest friends have shot and killed themselves while on the wrong antidepressants), and how many deaths are caused by acetaminophen overdose each year? I think the statistics may be closer together than you think.
A C E T A M I N O P H E N B L U E S
I fear that if good, inexpensive and reliable prescription and OTC medications are taken off hte market, abuse of other over-the-counter and prescription drugs (which is what the FDA is supposedly trying to stop) may be come more prevalent. If we have no access to hydrocodone and other inexpensive methods of treatment, I'd say it's far more likely that patients WILL eat a ton of aspirin, Tylenol, or other drugs, or else overdose on antidepressants, or turn to other means to lessen the pain, some of which are FAR less desirable than taking an extra vicodin from time to time when the pain is too much. Who is served by the removal of quality, inexpensive means of relieving pain in exchange for the release of new drugs? Drug companies? It's certainly not me or any other patient on a limited budget, that's for sure.